Legislation sponsored by Senator Judy Ward has passed the Pennsylvania Senate, aiming to support approximately 1.2 million state residents living with rare diseases. The bill, known as Senate Bill 715, seeks to extend the sunset provision of Act 14 of 2017 from 2025 to 2028. This extension will allow the Pennsylvania Rare Disease Advisory Council (PARDAC) to continue its work in researching and raising awareness about rare diseases.
Rare diseases are defined as those affecting fewer than 200,000 people in the United States, with over 250 new such diseases identified annually. Senator Ward emphasized her personal connection to the issue, stating: “As a nurse, I know first-hand the impact a rare disease can have on someone and their loved ones and the daily challenges it can present.” She added that “this community needs our help,” highlighting the importance of PARDAC’s ongoing efforts.
The advisory council was created to assist Pennsylvanians dealing with rare diseases and advocates for policies benefiting these individuals. The bill received unanimous bipartisan support in the Senate and will now proceed to the House of Representatives for further consideration.
For updates on legislation and activities within Pennsylvania’s 30th Senate District, residents can follow Senator Ward on Facebook at Facebook.com/SenJudyWard or X (Twitter) @SenatorJWard. Additional information is available on her website at SenatorJudyWard.com, where constituents can also sign up for her e-newsletter.
Nathan Akers is available for contact at 717-787-2421 for more details.
